Support and Resources for People Living with Rare Diseases
Lean on Bioblast Pharma for helpful information and resources
Because diseases such as oculopharyngeal muscular dystrophy (OPMD) and spinocerebellar ataxia type 3 (SCA3) are so rare, Bioblast Pharma realizes the importance of sharing disease and clinical trial information, keeping the rare disease community updated with helpful news and resources, as well as connecting patients with others who face similar challenges.
Some of the support and resources you can find are:
- Disease information
- Patient stories (coming soon) and advocacy groups
- Clinical publications